UPDATE: Coen Ashton's grieving family has issued a statement, saying the young man lived life the way everyone should, "never wasting a day".
"He loved sharing his zest for life and changed many people's lives along the way," the statement from his parents Dawn and Mark and brother Kai said.
"He enjoyed having everyone along to follow his life adventure.
"We will dearly miss him and the adventures he sent us on.
"There are no regrets, Coen never wasted a day."
The Organ and Tissue Authority issued the statement on behalf of the Ashton family.
The OTA said it was deeply saddened by Coen's passing and conveyed its condolences to Dawn, Mark and Kai as well as extended family and friends.
EARLIER: Five years after receiving a double lung transplant, former Maryborough man Coen Ashton has sadly died in hospital in Melbourne.
Born with cystic fibrosis, Coen rode a jet ski along the length of the Murray River when he was when he was 13.
OPINION: Coen Ashton, you will be so missed
He was the youngest person ever to do it - and he did it to raise awareness of organ donation.
In 2012 at the age of 15, Coen underwent the double lung transplant.
From the day he got his lungs, his motto was simple - my donor, my hero.
Last year Coen was named the Fraser Coast's Junior Citizen of the Year after he did a national tour to speak to thousands of school children about the importance of becoming organ donors.
But there were yet more challenges for Coen to face.
Last year his kidneys started to fail, meaning he would need to undergo another transplant.
As his kidney function deteriorated, Coen was forced to go on dialysis and he suffered extreme side effects.
His parents, Dawn and Mark, had remained hopeful of giving Coen one of their kidneys, but he had not been well enough to undergo the operation.
This week, Coen's condition continued to deteriorate.
He died on Wednesday, with friends and family leaving heartbroken and heartfelt messages on his Facebook page to remember the brave youngster who fought till the end.
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